PWS Information Index

Throughout the world Prader-Willi syndrome is believed to be among the ten most common syndromes seen at birth, and is the most common genetic syndrome causing morbid obesity in children. But most people, including many physicians and caregivers as well as new parents and family members are not familiar with this potentially life-threatening, devastating, life-long disorder. In order to help expand the international awareness and support available, we have collated a collection of guides, downloads and informative PWS resources for families, medical professionals and residential caregivers.

Resources for parents & families


Family Care (Famcare) is a board of IPWSO, designed to support families whose adult son or daughter lives at home.

Medical Professionals

Residential Caregivers

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Registered as a charity in England & Wales, charity no. 1182873